Are you collecting money?
No site is set up strictly for raising awareness of Nephrotic Syndrome. If you would like to donate to help find a cure please contact http://www.nephcure.
Is this site for profit?
No, this site is run strictly on donations and is paid for privately. We do not in any way profit off the donations given to the foundation.
Can I send you money to help?
Thank you, but no. Our goal is simply to raise awareness of this little known disease. If you would like to contribute, please visit http://www.nephcure.org/
What is Nephrotic Syndrome?
Nephrotic Syndrome (NS) occurs when there is a malfunction in the kidney’s filtering system (glomeruli) causing valuable protein in the blood to leak into the urine (proteinuria). This leakage causes fluid to accumulate in the body and prolonged leakage has been shown to cause kidney failure.One of the most common causes of Nephrotic Syndrome is Focal Segmental Glomerulosclerosis (FSGS), a disease that attacks the kidney’s filtering system, causing serious scarring.
What are some symptoms?
• Pronounced swelling in parts of the body (edema) most visible in the head, hands and feet.
• High level of cholesterol in the blood (hypercholesterolemia).
• Low level of water soluble protein in the blood (hypoalbuminemia).
• Large amounts of protein in the urine.
Additional Nephrotic Syndrome Statistics:
• Approximately 5 out of every 100,000 children are diagnosed with Nephrotic Syndrome every year (incidence) and 15 out of every 100,000 children are living with it today(prevalence).
• For patients who respond positively to treatment, the relapse frequency is extremely high. 90% of children with Nephrotic Syndrome will respond to treatment; however, an estimated 75% will relapse.
• Childhood Nephrotic Syndrome can occur at any age but is most common between the ages of 1½ and 5 years. It appears to affect boys more often than girls.
• Nephrotic Syndrome patients lose more than 3.5 grams of protein into urine during a 24-hour period, or 25 times the normal amount. This is the primary indicator of Nephrotic Syndrome.
• In 2006, 4584 children were hospitalized in the United States with a diagnosis of Nephrotic Syndrome at a rate of 17 cases per 10,000 hospitalized children.